Jewish Community Inclusion Program for People with Disabilities Minnesota Minneapolis

Publication: From Invisibility to Visibly In: Community Program Ignited Change in Awareness and Attidues toward Jewish with disabilities. Read article

Advocating for Families: Inclusion Specialist, Nanci Fine, helps people cope with the challenges of disabilities. Read article

Jewish Community Inclusion Program for People with Disabilities
Program Manager: Shelly Christensen, MA
Jewish Family and Children’s Service
13100 Wayzata Blvd. Suite 400
Minneapolis, MN 55305
schristensen@jfcsmpls.org

Council for Jews with Special Needs
Ina Levine Jewish Community Campus
12701 N. Scottsdale Road, Suite 205
Scottsdale, Arizona 85254-5453 Phone: (480) 629-5343
Fax: (480) 629-5365
TTY: (480)629-8271
http://www.cjsn.org/

Dysautonomia Foundation, Inc.
A non-profit organization supporting medical research and treatment for those afflicted with Familial Dysautonomia http://www.familialdysautonomia.org/
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Email: info@familialdysautonomia.org

Jewish Deaf Community Center
507 Bethany Road Burbank, CA 91504
http://www.jdcc.org/index.html

The Jewish Deaf Resource Center ( JDRC)
PO Box 318
Hartsdale, NY 10530
http://www.jdrc.org/contact.html
Email: JDRC501c3@aol.com
by voice or voicemail: 917-705-8941
by TTY/fax/VP (videophone): 614-476-922

Taglit Birthright Israel
Offers ten day first time educational trips to Israel for young adults ages 18-26. The National Jewish Council for the Disabled offers trips for young adults with disabilities.
http://njcd.org/birthright/index.php

Yachad/ National Jewish Council for the Disabled (NJCD)
11 Broadway, 13th Floor
New York NY, 10004
http://www.ou.org/ncsy/njcd/

Our Way Link to the Jewish Deaf Singles Registry
and other programs for Jews who are deaf or hard of hearing.
http://www.njcd.org/ourway/

Yad HaChazakah-The Jewish Disability Empowerment Center Inc.
c/o Bikkurim
111 Eighth Avenue, 11th Fl.
New York, NY 10011
212-284-6936 sshapiro@yad-jdec.org
http://yad-jdec.org

Led by and for Jews with disabilities and chronic health conditions, Yad HaChazakah-JDEC empowers people with disabilities to live, love, learn, work, worship and lead in Jewish communities by promoting changes in attitudes and community planning and by providing:

Personal Coaching and Mentoring
Peer Networking and Support
Advocacy and Resource Navigation
Topical Forums and Learning Opportunities
Public Awareness Campaigns

Sha’arim
Program Director: Chana Shagalow
4820 Minnetonka Blvd #300
St. Louis Park, MN 55416
Phone: (952)303-5276
Fax: (952)303-5307
Email: shaarim@shaarim.org
Website: www.shaarim.org

Consortium of Special Educators in Central Jewish Agencies
Jewish Community Inclusion Program for People with Disabilities is a member.
http://www.user.aol.comjesna/spedcon.htm

Bloomington School District 1350 West 106th Street - Door C Bloomington MN 55431-4126 (952) 681-6503

Brooklyn Center Earle Brown School 1500 59th Ave. N. Brooklyn Center MN 55430- (763) 561-4480

Eden Prairie School District 8100 School Road Eden Prairie MN 55344- (952) 975-7041

Hopkins School District 1001 State Highway 7 Hopkins MN 55305- (952) 988-4040

Intermediate School District 287 1820 Xenium Lane North Plymouth MN 55441-3790 (763) 550-7151

Minneapolis Public Schools 2225 E Lake Street, Room 222 Minneapolis MN 55407-1932 (612) 668-5401

Minnetonka School District 5621 County Road 101 Minnetonka MN 55345-4214 (952) 401-5017

Osseo School District 11200 - 93 Avenue North Maple Grove MN 55369-6605 (763) 391-7137

Richfield School District 7001 Harriet Avenue South Richfield MN 55423- (612) 798-6042

Robbinsdale Area Schools 4148 Winnetka Avenue North New Hope MN 55427- (763) 504-8082

St. Louis Park School District 6425 West 33rd Street St. Louis Park MN 55426-3498 (952) 928-6068

St. Paul School District 360 Colborne Street St. Paul MN 55102- (651) 767-8321

Jewish Family and Children’s Service of Minneapolis
13100 Wayzata Blvd. Suite 400
Minnetonka MN 55305
952-546-0616
TTY 952-591-0041
www.jfcsmpls.org

Jewish Family Service of St. Paul
1633 W. 7th St.
St. Paul, MN 55102
Phone: (651) 698-0767
Fax: (651) 698-0162
Website: http://www.jfssp.org

Fraser Child and Family Mental Health Program
Services for children whose parents or caregivers have concerns about their developmental, behavioral and/or emotional well-being. The program also provides services which assist parents in evaluating and building their skills. Includes neuropsychological testing.
3333 University Avenue SE
Minneapolis, MN 55414
(612) 331-9413
http://www.fraser.org/

PACER Center
www.pacer.org
8161 Normandale Blvd, Minneapolis, MN 55437, 800-537-2237, 952-838-9000, TTY 952-838-0190, fax 952-838-0199

St. David’s Child Development and Family Services
Programs for children and families, early childhood, occupational therapy, speech-language and music therapies, home and community based services for infants through adults.
3395 Plymouth Rd.
Minneapolis, MN 55305
(952) 939-0396
http://www.stdavids.net

Arc Greater Twin Cities
ph: 952-920-0855 | fax: 952-920-1480
2446 University Avenue W Ste 110
Saint Paul, MN 55114-1740
www.arcgreatertwincities.org

Autism Society of Minnesota
2380 Wycliff Street, #102
St. Paul, MN 55114
Fax: 651-642-1230
http://www.ausm.org/

Brain Injury Association of Minnesota
34 13th Avenue, NE, Suite B001
Minneapolis, MN 55413
(612) 378-2742; (800) 669-6442 (in MN)
E-mail: info@braininjurymn.org
Web: www.braininjurymn.org

Courage Center
3915 Golden Valley Road
Minneapolis, MN 55422
http://www.courage.org/
The mission of Courage Center, a not-for-profit rehabilitation organization, is to empower people with physical disabilities to reach for their full potential in every aspect of life.

Disability Linkage Line www.minnesotahelp.info
toll-free 1-866-333-2466
A resource specialist will be available during regular business hours (8:30 a.m. to 4:30 p.m.) to provide one-to-one assistance to help people learn about their options and connect with the supports and services they choose.

Inquiries include requests for information and referrals on disability benefits programs, home modifications, assistive technology, personal assistance services, transition services, accessible housing, employment, social activities and disability rights.

Down Syndrome Association of Minnesota
668 Transfer Road
St Paul, Minnesota 55114
phone: 651-603-0720 or 800-511-3696
http://www.dsamn.org

Epilepsy Foundation of Minnesota
1600 University Avenue West, Suite 205
St. Paul, MN 55104
651-287-2300 or 800-779-0777
E-mail: info@efmn.org
Web: www.efmn.org

LDA of Minnesota
5354 Parkdale Drive, Suite 200
St. Louis Park, MN 55416
952-922-8374
www.ldaminnesota.org

United Cerebral Palsy of Minnesota
Griggs-Midway Building
1821 University Avenue West, Suite 219
South St. Paul, MN 55104-2892
(651) 646-7588; (800) 328-4827, ext. 1437
E-mail: ucpmn@cpinternet.com

Attention Deficit Support Services
Link to resources, groups and support.
5354 Parkdale Drive, Suite 200
St. Louis Park, MN 55416
http://www.adssmn.org

Minnesota Speech-Language-Hearing Association
P.O. Box 26115
St. Louis Park, MN 55426
(952) 920-0787; (800) 344-8808
Web: www.msha.net

Spina Bifida Association of Minnesota
P.O. Box 29323
Brooklyn Center, MN 55429-0323
651-222-6395
E-mail: jscottthayer@msn.com
Web: www.sbaa.org

Tourette Syndrome Association
Minnesota Chapter
10249 Yellow Circle Drive, Suite 103
Minnetonka, MN 55343
952-918-0350
E-mail: director@tsa-mn.org
Web: www.tsa-mn.org

Hennepin County Developmental Disabilities
http://www.co.hennepin.mn.us
Click on Health, Housing, Social Services.
Click on People We Serve.
Click on Developmentally Disabled.

Institute on Community Integration (ICI)
University of Minnesota, 102 Pattee Hall, 150 Pillsbury Dr SE, Minneapolis, MN 55455, 612-624-6300, fax 612-624-9344

The Minnesota Governor’s Council on Developmental Disabilities
www.mncdd.org

Minnesota Disability Law Center
www.mndlc.org
430 First Ave # 300, Minneapolis, MN 55401, 800-292-4150 (intake), 612-334-5970, TTY 612-332-4668, fax 612-334-5755

Minnesota Office of the Ombudsman for Mental Health and Developmental Disabilities
www.ombudmhmr.state.mn.us

Minnesota State Council on Disability
www.disability.state.mn.us
121 E 7th Pl #107, St Paul, MN 55101, 800-945-8913, 651-296-6785

PACER Center
www.pacer.org
8161 Normandale Blvd, Minneapolis, MN 55437, 800-537-2237, 952-838-9000, TTY 952-838-0190, fax 952-838-0199

AccessAbility, Inc.
www.accessability.org
360 Hoover St NE, Minneapolis, MN 55413, 612-331-5958, fax 612-331-2448

Accessible Space, Inc.
www.accessiblespace.org
2550 University Ave W #330N, St Paul, MN 55114, 800-466-7722, 651-645-7271, fax 651-645-0541

Association of Residential Resources in Minnesota (ARRM)
www.arrm.org
1185 N Concord St #424, S St Paul, MN 55075, 800-551-2211, 651-291-1086, fax 651-293-9389

Jewish Vocational Service
13100 Wayzata Blvd., Suite 300
Minnetonka, MN 55305
Phone: 952-591-0300
Fax: 952-591-0227
E-mail: jvs@jvsmn.org
Website: http://www.jvsmn.org

Metropolitan Center for Independent Living
http://frontpage.mcil-mn.org
1600 University Ave #16, St Paul, MN 55104, 651-646-8342, TTY 651-603-2001, fax 651-603-2006

Minnesota Life College
www.minnesotalifecollege.com
7501 Logan Ave S #2A, Richfield, MN 55423, 612-869-4008, fax 612-869-0443

Technical Assistance on Transition and Rehabilitation (TATRA)
www.pacer.org/tatra/tatra.htm
8161 Normandale Blvd, Minneapolis, MN 55437, 800-537-2237, 952-838-9000, TTY

American Association on Mental Retardation (AAMR)
444 North Capitol Street, NW, Suite 846
Washington, D.C. 20001-1512
202-387-1968 or 800-424-3688
Fax: 202/387-2193
www.aamr.org

Council for Exceptional Children
CEC is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
1110 N Glebe Rd #300, Arlington, VA 22201, 888-232-7733, 703-620-3660 , TTY 866-915-5000 www.cec.sped.org

ERIC Clearinghouse on Disabilities & Gifted Education
800-538-3742
www.eric.ed.gov

Families and Advocates Partnership for Education (FAPE)
www.fape.org
PACER Center, 8161 Normandale Blvd, Minneapolis, MN 55437, 800-53-PACER (in MN only), 888-248-0822, 952-838-9000, TTY 952-838-0190, fax 952-838-0190

Individuals with Disabilities Education Act, IDEA Partners
www.ideapractices.org

Job Accomodations Network
Free consulting service designed to increase the employability of people with disabilities by:
1) providing individualized worksite accommodations solutions, 2) providing technical assistance regarding the ADA and other disability related legislation, and 3) educating callers about self-employment options.
http://www.jan.wvu.edu/
Links to an amazing quantity of informatin on the ADA, jobs, education, career information, disabilities and resources. http://www.jan.wvu.edu/portals/ed.htm

National Center on Accessibility
Training, technical assistance and research on access to parks, recreation, and tourism.
(812) 856-4422
www.indiana.edu/~nca

National Organization on Disability (NOD)
910 Sixteenth Street NW, Suite 600
Washington DC 20006
202-293-7999
www.nod.org

Pathways Awareness Foundation Inclusion Resources
Comprehensive site for inclusion in many faith communities. http://www.inclusioninworship.org/

School Behavior.com
www.schoolbehavior.com

The Arc
http://www.thearc.org/

U .S. Department of Education, Office of Special Education Programs
http://www.ed.gov/about/offices/list/osers/osep/index.html

Sabes Jewish Community Center
4330 S. Cedar Lake Rd.
Minneapolis MN 55416
952-381-3421
www.sabesjcc.org/

Saint Paul Jewish Community Center
1375 St. Paul Avenue
St. Paul MN 55116
651-698-0751
http://www.stpauljcc.org

Sabes JCC Camp Olami
Sabes JCC
4330 S. Cedar Lake Rd
Minneapolis MN 55416
952-381-3421
www.sabesjcc.org

St. Paul JCC Camp Butwin
945 Butwin Road
Eagan MN 55123
and
St. Paul JCC
1375 St. Paul Avenue
St. Paul MN 55116
651-698-0751
www.stpauljcc.org/campbutwin/

Temple Israel Camp TEKO

2324 Emerson Ave. S.
Minneapolis, MN 55405
612-377-8680
Fax: 612-377-6630
teko@templeisrael.com
www.teko.org

Overnight Camps

Camp Chi (JCC)
Summer Address:
Box 104
Lake Delton, WI 53940
608-253-1681
Fax Number: 608-253-7328 Email:
info@campchi.com
www.campchi.com
Contact: Ron Levin, Director
An enriching, Jewish overnight camping experience for kids 9-16, located on 600 acres on Lake Delton, WI

Camp Ramah Tikvah Program
65 E. Wacker Pl. Suite 1200
Chicago, IL 60601
312-606-9316
Fax: 312-606-7136
registrar@ramahwisconsin.com
www.ramahwisconsin.com
Contact: Rabbi David Soloff For Jewish teens, 13-17, with learning difficulties, including Asperger syndrome; 4-week or 8-week recreational, educational and social experience in a traditional camp setting.

Camp Simcha/Simcha Special
6600 N. Lincoln Ave. Suite 300
Lincolnwood, IL 60712
847-763-1818 or 888-763-1819
Fax: 847-763-1820
midwest@chailifeline.org
www.chailifeline.org
Year-round support services to families of children with cancer and other life-threatening illnesses. Kosher, medically supervised overnight camps for seriously ill children and teens.

YACHAD, National Jewish Council for Disabilities
11 Broadway, 13th Floor
New York, NY 10004
212-613-8229
Fax: 212--613-0796
njcd@ou.org
NJCD provides a variety of unique and "inclusive" sleepaway camp programs. Our participants enjoy a complete camping experience with activities that include swimming, boating, arts and crafts, drama, learning, sports, and so much more; all together with their non-handicapped peers.

Keshet Summer Programs
3210 Dundee Rd
Northbrook, IL 60062
847-205-0274
Fax: 847-205-1530
abbie@keshet.org
www.keshet.org
Contact: Abbie Weisberg, Director of Recreation Day and overnight camping experiences for children and young adults with disabilities.

Olin Sang Ruby Union Institute (OSRUI)
555 Skokie Blvd., Suite 225
Northbrook, IL 60062
847-509-0990 x 25
Fax: 847-509-0970
osrui@uahc.org
www.osrui.org
Contact: Denise Heimlich The Reform Movement's Midwest Region overnight camp for kids entering grades 3-12; offers different programs depending on age and area of interest.

The National Arts and Disability Center
National information dissemination, technical assistance and referral center specializing in the field of arts and disability. The NADC is dedicated to promoting the full inclusion of children and adults with disabilities into the visual, performing, media, and literary arts communities. Its resource directories, and noted bibliographies, related links and conferences serve to advance artists with disabilities and accessibility to the arts.
nadc.ucla.edu
VSA Arts of Minnesota Promoting the creative arts in people with disabilities Hennepin Center for the Arts
528 Hennepin Avenue, Suite 305
Minneapolis, Minnesota 55403
612-332-3888
800-801-3883
TTY: 612-332-3888
Fax: 612-305-0132
mn.vsarts.org

Family Institute for Creative Well-Being
The mission of the Family Institute for Creative Well-Being is to enhance the emotional, social, and spiritual health of families who have members with disabilities or chronic illnesses though therapeutic use of the creative arts.
www.familyinstitute-cwb.org
651-639-2527

National Arts and Disability Center
Tarjan Center for Developmental Disabilities
300 UCLA Medical Plaza Suite #3310
Los Angeles, CA 90095-6967
310-794-1141
Fax: 310-794-1143
nadc.ucla.edu

Upstream Arts, Inc.
The mission of Upstream Arts is to enhance the lives of youth with disabilities by promoting social and vocational independence through the power of arts education.
Julie A. Guidry, Executive Director
Upstream Arts, Inc.
1304 University Ave NE, Suite 306
Minneapolis, MN 55413
612-331-4584
Fax: 480-393-5587
www.upstreamarts.org

Hennepin Technical College
952-995-1300
info@hennepintech.edu
http://www.hennepintech.edu

Minneapolis Community and Technical College
1501 Hennepin Avenue
Minneapolis, MN 55403
612-659-6000 or 800-247-0911
TTY: 612-659-6731
http://www.mctc.mnscu.edu

Minnesota Life College Independence skills
7501 Logan Ave. S. 2A
Richfield, MN 55423
612-869-4008
Fax: 612-869-0443
www.minnesotalifecollege.com

Attention Deficit Disorder Association
1788 Second St #200
Highland Park, IL 60035
847-432-ADDA
Fax: 847-432-5874
www.add.org

Attention Deficit Disorder Resources
223 Tacoma Ave S #100
Tacoma WA 98402
253-759-5085
F ax: 253-572-3700
www.addresources.org

The Attention Deficit Information Network, Inc.
475 Hillside Ave
Needham, MA 02194
781-455-9895
Fax: 781-444-5466
www.addinfonetwork.com

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place #201
Landover, MD 20785
800-233-4050 or 301-306-7070, Fax 301-306-7090
www.chadd.org

Asperger Coalition of the U.S. ASC-US
PO Box 351268
Jacksonville, FL 32235
866-4ASPRGR
maapservices.org

Jewish Children with Autism
A community-wide Jewish religious school program for children on the autism spectrum who do not benefit from standard religious school programming. Click here for more information.

Autism-PDD Resources Network
www.autism-pdd.net

Autism Society of America, Inc.
7910 Woodmont Ave. #300
Bethesda, MD 20814-3015
800-328-8476, 301-657-0881, Fax: 301-657-0869
www.autism-society.org/site/PageServer

First Signs, Inc.
PO Box 358
Merrimac, MA 01860
978-346-4380, Fax: 978-346-4638
www.firstsigns.org

Autism Society of Minnesota
2380 Wycliff Street, #102
St. Paul, MN 55114
651-647-1083, Fax: 651-642-1230
http://www.ausm.org

International Rett Syndrome Association
9121 Piscataway RD
Clinton, MD 20735
1-800-818-RETT or 301-856-3334, Fax: 301-856-3336
www.rettsyndrome.org

S.I. Network Sensory Integration Resource Center
The KID Foundation
1901 Littleton Blvd Littleton, CO 80120
www.sinetwork.org

American Association on Mental Retardation
www.aamr.org
444 N Capitol St. NW #846
Washington, DC 20001
202-387-1968 or 800-424-3688, Fax: 202-387-2193

Arc of the U.S.
www.thearc.org
1010 Wayne Ave. #650
Silver Springs, MD 20910
(301) 565-3842, (800) 433-5255, fax (301) 565-5342

Association for Persons with Severe Handicaps (TASH)
www.tash.org
29 W Susquehanna Ave. #210
Baltimore, MD 21204
(410) 828-8274, (800) 482-TASH, TTY 410 -828-1306, fax 410 -828-6706

National Down Syndrome Society
www.ndss.org
666 Broadway #810
New York, NY 10012
(212) 460-9330, (800) 221-4602, fax (212) 979-2873

National Fragile X Foundation
www.fragilex.org
PO Box 190488
San Francisco, CA 94119-0488
800-688-8765, 510-763-6030, fax 510-763-6223

NOFAS National Association on Fetal Alcohol Syndrome
www.nofas.org
216 G St NE
Washington, D.C. 20002
202-785-4575, Fax 202-466-6456

SOFT Support Organization for Trisomy 18, 13, and Related Disorders
www.trisomy.org
2982 S Union St
Rochester, NY, 14624
800-716-7638, 716-594-4621, en espanol 631-226-3986

Williams Syndrome Association
www.williams-syndrome.org
P.O. Box 297
Clawson, MI 48017-0287
(248) 541-3630, fax (248) 541-3631

The National Information Clearinghouse on Children Who Are Deaf-Blind DB Link
www.tr.wou.edu/dblink/index.htm
Teaching Research
345 N Monmouth Ave
Monmouth, OR 97361
800-438-9376, TTY 800-854-7013

Helen Keller National Center for Deaf-Blind Youths & Adults, Technical Assistance Center
www.helenkeller.org/national/
111 Middle Neck Road
Sands Point, NY 11050
516-944-8900, TTY 516-944-8637, fax 516-944-7302

National Center on Low Incidence Disabilities
www.nclid.unco.edu
University of Northern Colorado
Campus Box 146
Greeley, CO 80639
800-395-2693 v/TTY

BEGINNINGS For Parents of Children Who Are Deaf or Hard of Hearing, Inc.
www.beginningssvcs.com
PO Box 17646
Raleigh, NC 27619
v/TTY in NC only 800-541-HEAR, v/TTY 919-850-2746

Hands and Voices
www.handsandvoices.org
PO Box 37192
Denver, CO 80237
866-422-0422, 303-300-9763

National Association of the Deaf
www.nad.org
814 Thayer Ave.
Silver Spring, MD 20910-4500
301-587-1788, TTY 301-587-1789, fax 301-587-1791

American Diabetes Association
www.diabetes.org/home.jsp
1701 N Beauregard St
Alexandria, VA 22311
800-342-2383

Juvenile Diabetes Research Foundation International (JDF)
www.jdf.org
120 Wall St., 19th Floor
New York, NY 10005-4001
212-785-9500, 800-223-1138 v/TTY,212-785-9500 fax, 800-533-2873

American Academy of Child & Adolescent Psychiatry Facts for Families
www.aacap.org/info_families/index.htm
3615 Wisconsin Ave, NW
Washington, DC 20016
202-966-7300, fax 202-966-2891

Child and Adolescent Bipolar Foundation
www.bpkids.org
1187 Wilmette Ave PMB #331
Wilmette, IL 60091
847-256-8525, Fax 847-920-9498

National Alliance for the Mentally Ill
www.nami.org
Colonial Place Three
2107 Wilson Blvd. #300
Arlington, VA 22201
800-950-6264, 703-524-7600, fax 703-524-9094

National Mental Health and Education Center
www.naspcenter.org
4340 East West Hwy #402
Bethesda, MD 20814
301-657-0270, fax 301-657-0273

Obsessive-Compulsive Foundation, Inc.
www.ocfoundation.org
337 Notch Hill Rd
North Branford, CT 06471
203-315-2190, fax 203-315-2196

PACER Center EBD Project
www.pacer.org/ebd/
8161 Normandale Blvd
Minneapolis, MN 55437
800-537-2237, 952-838-9000, TTY 952-838-0190, fax 952-838-0199

Reasonable Accommodations for People with Psychiatric Disabilities
www.bu.edu/cpr/reasaccom/
Center for Psychiatric Rehabilitation
940 Commonwealth Ave W
Boston, MA 02215
617-353-3549, fax 617-353-7700

Center for Jewish Genetic Diseases
http://www.mssm.edu/jewish_genetics/
Mount Sinai School of Medicine
One Gustave L. Levy Place
New York, New York 10029

March of Dimes Birth Defects Foundation
www.modimes.org
1275 Mamaroneck Ave.
White Plains, NY 10605
888-663-4637, 914-428-7100 v/TTY, fax 914-428-8203

National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/
Centers for Disease Control and Prevention, 770-488-7150

Allergy and Asthma Network Mothers of Asthmatics
www.aanma.org
2751 Prosperity Ave # 150
Fairfax, VA 22031
800-878-4403, fax 703-573-7794

American Chronic Pain Association
www.theacpa.org
PO Box 850
Rocklin, CA 95677
916-632-0922, fax 916-632-3208

Arthritis Foundation
www.arthritis.org
P.O. Box 7669
Atlanta, GA 30357-0669
800-283-7800, 404-872-7100, fax 404-872-0457

Candlelighters' Childhood Cancer Foundation
www.candlelighters.org
P.O. Box 498
Kensington, MD 20895
800-366-2223, 301-962-3520, fax 301-962-3521

The CFIDS Association of America Chronic Fatigue and Immune Dysfunction Syndrome
www.cfids.org
PO Box 220398
Charlotte, NC 20222
704-365-2343, 800-442-3437, fax 704-365-9755

Crohn's and Colitis Foundation of America
www.ccfa.org
386 Park Ave S 17th Fl
New York, NY 10016
800-932-2423, fax 212-779-4098

FACES the National Craniofacial Association
www.faces-cranio.org
PO Box 11082
Chattanooga, TN 37401
800-332-2373, 423-266-1632, fax 423-267-3124

The Food Allergy and Anaphylaxis Network
www.foodallergy.org
10400 Eaton Place #107
Fairfax, VA 22030
800-929-4040

Lupus Foundation of America, Inc.
www.lupus.org
1300 Piccard #200
Rockville, MD 20850-4303
800-558-0121, 301-670-9292

National Hemophilia Foundation
www.hemophilia.org
116 W 32nd St
11th Floor
New York , NY 10001
800-42HANDI, 212-328-3700, fax 212-328-3777

Organic Acidemia Association
www.OAANews.org
13210 35th Ave N
Plymouth, MN 55441
763-559-1797, fax 763-694-0017

Share and Care Cockayne Syndrome Network
www.cockayne-syndrome.org
Shirley Rodriguez, 972-613-4590 or 214-728-2679

United Mitochondrial Disease Foundation
www.umdf.org
8085 Saltsburg Rd #201
Pittsburgh, PA 15239
412-793-8077, fax 412-793-6477

Parents of Kids with Infectious Diseases
www.pkids.org
PO Box 5666
Vancouver, WA 98668
1-877-55PKIDS, 360-695-0293, fax 360-695-6941

Coordinated Campaign for Learning Disabilities
www.focusonlearning.org
C/o Communications Consortium Media Center
1200 New York Ave NW #300
Washington, DC 20005
202-326-8700
Good links to other LD sites

The International Dyslexia Association
www.interdys.org
8600 LaSalle Road
Chester Bldg. #382
Baltimore, MD 21286-2044
(800) 222-3123, (410) 296-0232, fax (410) 321-5069
Great FAQs section and links about dyslexia

LD Online
www.ldonline.org
WETA, 2775 S Quincy St
Arlington, VA 22206
703-998-2600, fax 703-998-3401
Excellent site for parents, teachers and other professionals

Learning Disabilities Association of America
www.ldaamerica.org
4156 Library Rd.
Pittsburgh, PA 15234-1349
412-341-1515, fax 412- 344-0224
National organization - Local chapter of LDA is http://www.ldaminnesota.org/. LDA Minnesota recently merged with Attention Deficit Support Services, another very good resource on ADHD.

NLD on the Web
www.nldontheweb.org Non-verbal Learning Disorders (NLD) website that provides research and excellent practical strategies and information about NLD

National Center for Learning Disabilities
www.ncld.org
381 Park Ave. S, Suite 1401
New York, NY 10016
888-575-7373, 212- 545-7510, fax 212-545-9665
Special sections for parents and educators on learning disorders.

National Coalition on Auditory Processing Disorders, Inc. (NCAPD)
www.ncapd.org
PO Box 11810
Jacksonville, FL 32239
904-743-4300
Research and FAQs

Epilepsy Foundation
www.epilepsyfoundation.org
4351 Garden City Dr.
Landover, MD 20785
800-332-1000, 301-459-3700, fax 301-577-2684
Research and information site about epilepsy and related seizure disorders

Hydrocephalus Foundation
www.hydroassoc.org
870 Market St #705
San Francisco, CA 94102
888-598-3789, 415-732-7040.
Links to services and resources for families

Kids Move, (movement disorders)
www.wemove.org/kidsmove/
c/o We Move, 204 W 84th St
New York , NY 10024, 800-437-MOV2, fax 212-875-8389
Thorough website addressing many motor and movement disorders, not just for kids but for adults as well. Excellent resource.

The Lissencephaly Network, Inc.
www.lissencephaly.org
10408 Bitterroot Ct,
Ft Wayne IN 46804
260-432-4310, fax 260-432-4316 Lissencephaly, or smooth brain disorder, is addressed well in this informational website.

National Headache Foundation
www.headaches.org
428-W St James Pl 2nd Fl
Chicago, IL 60614
1-888-NHF-5552, fax 773-525-7357. Visitors must register to access this website.

National Hydrocephalus Foundation
www.nhfonline.org/aboutus.php
12418 Centralia
Lakewood, CA 90715
888-857-3434, 562-402-3523, fax 562-924-6666. In addition to information this site seeks to connect families to each other for support.

National NF Foundation (Neurofibromatosis)
www.nf.org
95 Pine St 16th Fl
New York, NY 10005
800-323-7938, 212-344-6633, fax 212-747-0004
Support, information and even a summer camp.

Neurofibromatosis, Inc.
www.nfinc.org
8855 Annapolis Rd #110
Lanham, MD 20706
1-800-942-6825, 301-918-4600, fax 301-918-0009
This site offers chat rooms for teens, adults and parents. They also have a summer camp.

Tourette's Syndrome Association, Inc.
www.tsa-usa.org
42-40 Bell Blvd., Suite 205
Bayside, NY 11361-2820
718-224-2999, fax 718-279-9596
Comprehensive information about Tourette’s syndrome.

Tuberous Sclerosis Alliance
www.tsalliance.org
801 Roeder Rd. #750
Silver Spring, MD 20910
800-225-6072, 301-562-9890, fax 301-562-9870. Tuberous Sclerosis website with information and awareness raising opportunities.

Children's Hemiplegia and Stroke Association (CHASA)
www.chasa.org
Suite 305, PMB 149, 4101 W Green Oaks
Arlington, TX 76016
817-492-4325
Site related to brain disorders caused by pediatric stroke.

Ehlers Danlos National Foundation
www.ednf.org
6399 Wilshire Blvd #203
Los Angeles, CA 90048
323-651-3038, fax 323-651-1366. Connective tissue disorder site.

Human Growth Foundation
www.hgfound.org
997 Glen Cove Ave,
Glen Head, NY 11545
800-451-6434, 516-671-4041, fax 526-671-4055. Addresses a number of growth disorders

Helping Hands (for families of children with upper limb differences)
www.helpinghandsgroup.org
PO Box 332
Medfield, MA 02052
Support and information for parents

Let's Face It USA
www.faceit.org
PO Box 29972
Bellingham, WA 98228
360-676-7325. Surgery resources, parent support

Little People of America
www.lpaonline.org
PO Box 745
Lubbock, TX 79408
888-572-2001

The Magic Foundation
www.magicfoundation.org
1327 N Harlem Ave
Oak Park, IL 60302
800-362-4423, fax 708-383-0808
Excellent site for disorders that affect a child’s growth.

National Marfan Foundation
www.marfan.org/nmf/index.jsp
382 Main St
Port Washington, NY 11050
1-800-MARFAN, 516-883-8712, fax 516-883-8040. Connective tissue disorder affecting up to 1 in 5000 people.

National Multiple Sclerosis Society
www.nationalmssociety.org
733 3rd Ave.
New York, NY 10017
212-986-3240, 800-344-4867, fax 212-986-7981. Resource for children and adults with MS.

National Spinal Cord Injury Association
www.spinalcord.org
6701 Democracy Blvd. #300-9
Bethesda, MD 20817
800-962-9629, 301-588-6959, fax 301-588-9414

Osteogenesis Imperfecta Foundation
www.oif.org/site/PageServer
804 W Diamond Ave. #210
Gaithersburg, MD 20878
800-981-2663, 301-947-0083, fax 301-947-0456. Information on Brittle Bone disorder

Pediatric Stroke Network
www.pediatricstrokenetwork.com
c/o Heather Hangen, PO Box 253, Greendale, WI 53129. Support group available.

Spina Bifida Association of America
www.sbaa.org
4590 MacArthur Blvd. NW #250
Washington, DC 20007-4226
800- 621-3141, 202-944-3285, fax 202-944-3295. Comprehensive site offering support, links and medical information

United Cerebral Palsy Association
www.ucp.org
1660 L St. NW #700
Washington, DC 20036-5602
800-872-5827, 202-776-0406, fax 202-776-0414

UCP of Minnesota
1821 University Avenue West #219 South
St. Paul, MN 55104-2892
Phone: (651) 646-7588
Fax: (651) 646-3045
E-mail: ucpmn@cpinternet.com
go to http://www.ucp.org to link to UCP of Minnesota

American Speech-Language-Hearing Association
www.asha.org/default.htm
10801 Rockville Pike
Rockville, MD 20852-3279
800-638-8255, 301-897-5700, TTY 301-897-0157, fax 301-571-0457

Apraxia Kids
www.apraxia-kids.org This site provides information about apraxia of speech disorders.

National Center for Stuttering
www.stuttering.com
200 E 33rd St. #17C
New York, NY 10016
800-221-2483, 212-532-1460, fax 212-683-1372. Comprehensive site on the causes of stuttering, good information for someone who stutters.

National Stuttering Association
www.nsastutter.org
4071 E LaPalma Ave Suite A
Anaheim Hills, CA 92807
800-364-1677, fax 714-630-7707. Information for people who stutter, family members, support persons and professionals

Brain Injury Association
www.biausa.org
105 N Alfred St.
Alexandria, VA 22314
800-444-6443, 703-236-6000, fax 703-236-6001

Brain Injury Association of Minnesota
http://www.braininjurymn.org
34 13th Ave NE, Suite B001
Minneapolis, MN 55413 phone:
612-378-2742 or 1-800-669-6442, fax: 612-378-2789
info@braininjurymn.org State resource on Traumatic Brain Injury

Brain Injury Society
www.BISociety.org
1901 Ave N #5E
Brooklyn, NY 11218
718-645-4401 or 718-469-4100. The organization works with clients, families and caregivers to identify strategies and techniques to maximize the new found potentials for a stronger recovery.

Head Injury Hotline
www.headinjury.com
212 Pioneer Bldg
Seattle, WA 98104
206-621-8558. Self-advocacy site for individuals who have sustained a brain injury

International Brain Injury Association
www.internationalbrain.org
505 Wythe St
Alexandria, VA 22314
703-683-8400, fax 703-683-8996. The Associations 7 th World Congress will be held in Jerusalem in 2007.

American Foundation for the Blind
www.afb.org
11 Penn Plaza #300
New York, NY 10001
800-232-5463, 212-502-7600, fax 212-502-7777, TTY 212-502-7662.
This site focuses on living with vision loss.

Foundation Fighting Blindness
www.blindness.org
11435 Cronhill Dr.
Owings Mills, MD 21117-2220
888-394-3937, 410-568-0150, TTY 800-683-5555 and 410-363-7139. Information on retinal and other eye diseases

National Association for Parents of Children with Visual Impairments
www.spedex.com/napvi/
PO Box 317
Watertown, MA 02471-0317
617-972-7441, 800-562-6265, fax 617-972-7444.
Online network of support

National Federation of the Blind
www.nfb.org
1800 Johnson St
Baltimore, MD 21230
410-659-9314. Information on national conferences, vision loss information for all ages.

National Organization of Parents of Bind Children
www.nfb.org/nopbc.htm
1800 Johnson St.
Baltimore, MD 21230
410-659-9314, fax 410-685-5653. Link to Minnesota Parents of Blind Children chapter

Disability Resource Guide A comprehensive listing of local and national secular and Jewish disability resources.